84:. It operates a toll-free information and referral line. It organizes and speaks at conferences. Its staff have published in professional journals, scholastic books, popular press and alternative publications. NEC has "been involved" in many national boards and committees and in policy consultations at the White House, in Congress, in federal agencies such as HUD, the Social Security Administration, HCFA, the Joint Commission on Hospital Accreditation, and The President's Commission on Disability, and at the regional and local level with organizations such as HMOs and state divisions of mental health programs. It has developed educational, training and self-help resources. NEC staff have been featured by CNN,
253:. He was involuntarily hospitalized three times. He reports being influenced by those who were able to show they cared about the person inside and gave him hope that he might some day recover. He went on to become a psychiatrist. He was told during psychiatric training that "You can’t talk to an illness" but believed that talking to the person inside is a key method for building trust and recovery. He has since worked as a psychiatrist in hospitals and clinics, while also being a part of the consumer movement. He said that a very significant part of the reason for becoming a psychiatrist was wanting to bring to the field what he wished had been there when he was going through
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that was originally designed to enable people to live in the community, rather than in psychiatric hospitals, but according to NEC has become a "coercive, lifelong, and nonclient-directed system with medication compliance as its most important tenet" NEC conducted a national survey of the use of PACE
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NEC developed an approach termed
Personal Assistance in Community Existence (PACE). It is based on the premise that people can potentially recover fully from even the most severe forms of mental illness, and on an Empowerment Model of Recovery and prevention. It is an education program to help shift
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the culture of mental health from institutional thinking to recovery thinking, designed for people training to become peer coaches, people furthering their recovery, and people learning new skills to help others. It has previously been deliberately contrasted with "PACT" - Program of
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to people who have been labeled with mental illness diagnosis. It argues that recovery and empowerment are not the privilege of a few but a process that is possible for everyone to embark on and find help with. Although unconventional to those accustomed only to a narrow
197:"in "Edge of Sanity," first aired on 1997. Deegan herself is a psychologist who became highly successful despite multiple psychiatric hospitalizations. She was diagnosed as having schizophrenia as a teenager.
165:(GAF) score of 60 or below and untrained person would describe labeled person as sick vs score of 61 or above and untrained person would describe the recovered person as not sick (normal)
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was an NEC staff person. Chamberlin was diagnosed with depression at the age of 21 but considered herself recovered, which she attributed to having been a non-compliant patient.
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with people who were severely mentally ill but have met criteria for recovery, from which ten major principles of how people recover were extracted:
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Weak sense of self defined by authority and little future direction vs strong self defined from within and peers, strong sense of purpose and future
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Ahern L, Fisher D. Recovery at your own PACE (Personal
Assistance in Community Existence). J Psychosoc Nurs Ment Health Serv. 2001;39:22-32.
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Ahern L, Fisher D. Personal
Assistance in Community Existence: A Recovery Guide. Lawrence, Mass: National Empowerment Center; 1999.
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Fisher D, Chamberlin J. PACE/Recovery Peer
Training Recovery Curriculum. Lawrence, Mass: National Empowerment Center; 2004.
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An
Empowerment Model of Recovery From Severe Mental Illness: An Expert Interview With Daniel B. Fisher, MD, PhD
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NEC and other groups are working to implement the transformation to a recovery-based system recommended by the
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Psychiatric
Rehabilitation Journal Volume 29, Number 2 / Fall 2005 Pages 42-145 DOI 10.2975/29.2005.142.145
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NEC research also identified characteristics distinguishing those in illness and those "in recovery":
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Strong emotions treated as symptoms by professionals vs worked through and communicated with peers
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Recovery Vision: New paradigm, new questions, new answers. An event for World Health Day 2001
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Ahern L, Fisher D. PACE/Recovery
Curriculum. Lawrence, Mass: National Empowerment Center; 2001.
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How the pace program builds a recovery-transformed system: Results from a national survey
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This American Life, Chicago Public Radio, 02.04.2000, originally aired 01.31.1997
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Personal Assistance in Community Existence: A Recovery Guide
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Recovery From Schizophrenia: From Seclusion to Empowerment
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James H. Zahniser, Laurie Ahern, Daniel Fisher (2005)
24:) is an advocacy and peer-support organization in the
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Medscape Psychiatry & Mental Health. 2005;10(1)
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547:Mental health organizations based in Massachusetts
225:. While working as a biomedical researcher at the
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305:Psychiatrist Turns Illness Into Empowerment Tool
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136:Transformation From Severe Emotional Distress
115:Connecting at a Human, Deeply Emotional Level
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229:before he was a psychiatrist, Fisher had a
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112:Believing in the Person's Full Potential
109:Believing You'll Recover and Having Hope
82:New Freedom Commission on Mental Health
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219:George Washington University
139:Recovery From Mental Illness
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127:Following Meaningful Dreams
121:Having a Voice of One's Own
103:Trusting Oneself and Others
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255:psychosis
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