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152:, information bulletins, a network of local chapters and contact people, an informational Web site and bulletin boards. The objective is to disseminate correct information about albinism through the media, libraries, medical professionals, and support groups for people with albinism in the United States and other countries the Albinism World Alliance.
201:, vision testing, educational concerns, employment, makeup, social issues and technology. Because of the rarity of albinism, the NOAH conferences allow people with albinism to meet with others sharing the same condition. Several local chapters and special interest groups also host mini-conferences throughout the year.
212:. This was the first and only summer camp experience designed specifically for children with albinism. The camp provides structured activities, educational sessions and social events for young children and families, taking into account the unique visual and sun care needs of children with the condition.
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NOAH is operated by volunteers. It is funded primarily by member dues and contributions. NOAH also receives received grants for specific projects, such as its handbook for new parents. The NOAH board of directors has committees on advocacy, conferences, financial development, albinism awareness,
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In 2008, NOAH established the
Michael J. McGowan Leadership Scholarship Award for college students with albinism. It was named after NOAH president Michael J. McGowan. NOAH awards one scholarship annually to a student with albinism enrolled in an undergraduate college program.
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NOAH provides special support to parents with newly diagnosed children. NOAH's Rapid
Responder Program connects new parents with other parents of children with albinism to share concerns and reassurance. Specially trained Rapid Responders provide medical, social and
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On years between national conferences, Noah hosts a social weekend called Adult Day. The event provides educational programming, social events and community service projects to keep the albinism community connected.
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character is just the latest in a long string. The problem is there has been no balance. There are no realistic, sympathetic or heroic characters with albinism that you can find in movies or popular culture."
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248:. In 1998, NOAH established a relationship with Positive Exposure, a New York-based initiative that celebrates genetic diversity through photography and international advocacy efforts.
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for its portrayal of a clichéd and offensive albino character named Silas. In a report by the
Associated Press, NOAH President Mike McGowan was quoted as saying "The
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Vail Reese, documents the portrayal of conditions like albinism in the media. NOAH works to counter negative and inaccurate depictions of albinism.
168:. In that nation, dozens of people with albinism have been slaughtered by individuals believing that their body parts will bring them good fortune.
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236:. While its focus is on children from birth through first grade, the book also provides information and advice for parents of older children.
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NOAH has worked with
Positive Exposure and the Under the Same Sun Fund to stop the violence against individuals with albinism in parts of
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NOAH maintains collaborative relationships with the HPS Network, which promotes research, fellowship and advocacy for individuals with
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Every two years, NOAH hosts the NOAH National
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healthfinder.gov — National
Organization for Albinism and Hypopigmentation - NOAH
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News: 'Da Vinci Code' premier sparks protests - OCRegister.com
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Raising a Child with
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185:Skinema.com, a Web site run by San Francisco
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