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Independent living

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734:, and the provincial and federal governments tend to squabble over funding. All levels of government are pressured to limit spending while maintaining equitable and accessible services for disabled and dependent persons. The result is a fragile system of provincially run community care services that ration medical care while avoiding the complex social issue of long-term community care reform. Canadian policymakers talk about a social model of disability and typically recognise that this model is preferred by disabled persons, however, the policy reality of independent living falls closer to a model that combines biomedical and neoliberal ideologies while neglecting social and environmental determinants of ability. Independent living remains difficult for many people and institutionalisation is offered as an ongoing practical solution to meeting care needs. Noticeable in the ideological push for independent living is the marketisation of institutional care as independent living in 21st century Canada. Funding is through a decentralised mix of publicly paid, private-for-profit, and private-not-for-profit systems. Beyond home care, community care is offered through a variety of service delivery models including supportive living, assisted living, and long-term care. 678:. His biggest educational challenge came when he was accepted at college. After struggling to get accepted, the UCBerkeley refused to give Roberts financial aid. He then sued Berkeley for access and integration. Although he won the case, Roberts was housed in school's infirmary instead of the dorms. As others with disabilities started attending the school and living in the infirmary, an activist group called the Rolling Quads was formed. They ended up starting the Disabled Students' Program, a resource for those with disabilities that was run by people with disabilities. This program led to the first independent living center in America being made, the Berkeley Center for Independent Living. These centers flourished across the United States and are a huge part of why Ed Roberts was so instrumental in the start of the Independent Living Movement. As well, a major project in Berkeley, California led by Roberts and others at the Center for Independent Living led to curb cuts up and down Telegraph and Shattuck Avenues creating an extensive path of travel. 695:
changed when farm workers and their families, replaced by technology on farms, migrated from small rural communities to large urban centres in search of gainful employment in industry. The redistribution of paid agricultural labour to industry created a shortage of unpaid domestic care for disabled and dependent persons whose caregivers also became occupied with paid industrial labour. The taken-for-granted economy of care (previously unpaid and supported by families and small rural communities) was disrupted, and industrialised communities suffered ballooning levels of homelessness and poverty as a consequence of an industrialised social structure.
686:"Independent Living does not mean that we want to do everything by ourselves, do not need anybody or like to live in isolation. Independent Living means that we demand the same choices and control in our every-day lives that our non-disabled brothers and sisters, neighbors and friends take for granted. We want to grow up in our families, go to the neighborhood school, use the same bus as our neighbors, work in jobs that are in line with our education and interests, and raise families of our own. We are profoundly ordinary people sharing the same need to feel included, recognized and loved." 674:) and of course, early friends and collaborators in the 1970s (Julie Ann Racino) and university and government supporters throughout the 1980s and 1990s. Ed Roberts was a quadriplegic who dealt with discrimination in many different aspects of his life. His fight for acceptance in schools, however, is what Roberts is most well known for. In high school, Roberts was stopped from graduating because he could not complete his gym requirement, as he was paralyzed and spent most of his time in an 25: 2404: 509: 2414: 714:. Neoliberal thinkers oppose state interventions such as institutional care, promoting competitive market-based care delivery systems as cost-effective solutions to care for dependent and disabled persons. With support from both movements, community care gained popularity as a moral and cost-effective alternative to institutional care. 786:, and are run and controlled by persons with disabilities. According to the IL approach, the example of a peer, somebody who has been in a similar situation, can be more powerful than a non-disabled professional's interventions in analyzing one's situation, in assuming responsibility for one's life and in developing coping strategies. 694:
Canada's history of independence, home living, and the independent living movement can be traced back to the industrial revolution of the 19th century. The industrial revolution precipitated rapid changes in the structure of society and the paid and unpaid labour economies. The distribution of labour
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contribute to negative attitudes towards people with disabilities, portraying them as sick, defective and deviant persons, as objects of professional intervention, or as a burden for themselves and their families. These images have consequences for disabled people's opportunities for raising families
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These newer forms of institutional care attempt to maximise independent living while minimising care provided, both to support disabled and dependent person's identified needs and to control costs in the formal care economy. Unmet needs of deinstitutionalised care-dependent people may be absorbed by
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Urban communities pushed governments for an ethical solution to the problem of uncared for disabled and dependent persons. Provincial governments responded by building and funding medical institutions, however, institutional care was deeply flawed. Institutionalised care created a paternalistic and
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There is a fundamental set of services (Core Services) found in all of the Centers, but there is some variation in the programs that are offered, the funding sources, and the staffing, among other things. Depending on the public services in the community, Centers might assist with housing referral
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In the late 20th century, a social movement called the independent living movement fought to re-identify disabled and dependent persons as people with beliefs, values, dreams, and identities that extended beyond their medical diagnoses. The overarching goal of the movement was to gain choice and
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Deinstitutionalisation coincided with an economic downturn in the 1980s. The goals of the independent living movement - choice, control, and quality care - were essentially co-opted by neoliberal ideals of cost-control, self-sufficiency, and minimalist state intervention. Deinstitutionalisation
793:– can learn to take more initiative and control over their lives. For example, peer support is used in Independent Living Skills classes where people living with their families or in institutions learn how to run their everyday lives in preparation for living by themselves. 729:
Home care, or home-based community care, came into effect in the 1980s in most Canadian Provinces as one policy solution to bridge the gap between institutional and community care. The transition is ongoing and contentious. Home care is not covered under the 1984
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independent, or at least have families that could provide support. Community care has been structured as a compromise between neoliberal values and the lived realities of disabled and dependent persons of the independent living movement.
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occurred alongside health and welfare service restructuring in a concerted effort to reduce public spending and improve the efficiency of formal care. Service reductions were justified by neoliberal beliefs that all people
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developed by people with disabilities themselves. The first Independent Living ideologists and organizers were people with extensive disabilities (e.g.,
820:(NCIL, 1989–2011) as a project, which became a spin-out independent organisation in the early 2000s before merging with two other organisations to form 2050: 907: 699:
segregated system that medicalised the identities of disabled and dependent persons and actively participated in the abuse of their human rights.
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control for dependent and disabled persons in the delivery of health and social care through state-supported community re-integration and care.
801:. Typically, Centers work with local and regional governments to improve infrastructure, raise awareness about disability issues and lobby for 35: 2024: 987:
Illario, Maddalena; Vollenbroek-Hutten, Miriam M. R.; Molloy, D. William; Menditto, Enrica; Iaccarino, Guido; Eklund, Patrik (14 June 2018).
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DiGennaro Reed, Florence D.; Strouse, Michael C.; Jenkins, Sarah R.; Price, Jamie; Henley, Amy J.; Hirst, Jason M. (11 June 2014).
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families and communities via the unpaid care economy, into existing systems of acute and primary care, or be left unaddressed.
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With the rise in Senior population, Independent Living facilities have risen in popularity as an option for aging citizens.
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In most countries, proponents of the Independent Living Movement claim preconceived notions and a predominantly
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According to the IL Movement, with peer support, everyone – including persons with extensive
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DeJong, Gerben (1979). "Independent Living: From Social Movement to Analytic Paradigm".
2340: 1890: 1636: 1461: 1261: 1234:"Reconciling tensions: Needing formal and family/friend care but feeling like a burden" 1015: 988: 964: 939: 588: 474: 100: 2294: 2197: 2147: 1958: 1819: 1788: 1496: 1489: 1468: 1311: 1306: 1289: 1265: 1253: 1085: 1047: 1020: 969: 731: 639: 584: 319: 279: 162: 16:
Housing and community arrangements that maximize independence and self-determination
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International Classification of Functioning, Disability and Health
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Canadian Journal on Aging / La Revue Canadienne du Vieillissement
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The independent living movement found significant support for
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in January 2012. All these organisations subscribe to the
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deal primarily with USA and Europe and do not represent a
1340:"Home care in Canada: From the margins to the mainstream" 989:"Active and Healthy Ageing and Independent Living 2016" 913:
Timeline of disability rights outside the United States
1367:"From bad to worse: Residential elder care in Alberta" 758:
denounced human rights violations of disabled people.
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Convention on the Rights of Persons with Disabilities
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and rehabilitation experts' concepts of integration,
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ABC-CLIO Companion to the Disability Rights Movement
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British Council of Organisations of Disabled People
1488: 1460: 908:Timeline of disability rights in the United States 1435:"Independent Living for Disabilities and Seniors" 1365:Campanella, D.; Bower, S. S. (November 6, 2013). 797:and adaptation, personal assistance referral, or 761: 2430: 634:The Independent Living Movement grew out of the 1072: 1070: 920:– social integration beyond independent living 710:through another ideological movement known as 2025:Declaration on the Rights of Disabled Persons 1856: 1556: 1064:Richard Scotch, www.jstor.org/stable/3350150. 803:legislation that promotes equal opportunities 541: 32:The examples and perspective in this article 1495:. Santa Barbara, California: ABC-CLIO, Inc. 1104:Richard Scotch, www.jstor.org/stable/3350150 770:was founded by disability activists, led by 1067: 2413: 2214:Augmentative and alternative communication 1863: 1849: 1563: 1549: 1113: 548: 534: 1467:. Philadelphia: Temple University Press. 1458: 1305: 1082:A Disability History of the United States 1014: 1004: 963: 70:Learn how and when to remove this message 1525:) is being considered for deletion. See 1338:Canadian Healthcare Association (2009). 2249:Disproportionality in special education 1731:Nursing home care in the United Kingdom 1414:cripple tribunal on disabilityworld.org 1395: 1294:Health and Social Care in the Community 1076: 778:. These Centers were created to offer 2431: 1736:Nursing home care in the United States 1452: 1231: 1037: 818:National Centre for Independent Living 145:Individualized Education Program (IEP) 1844: 1544: 1486: 1391: 1389: 1387: 1385: 1383: 1360: 1358: 1356: 1354: 1352: 1333: 1331: 1329: 1327: 1325: 1283: 1281: 1279: 1277: 1275: 1227: 1225: 1223: 1221: 1205: 1203: 1190:"Disability right movement in Canada" 1187: 1183: 1181: 1179: 1177: 415:Disabled Peoples' International (DPI) 1209: 1158: 1156: 1154: 1152: 1150: 1148: 689: 339:Social Security Disability Insurance 18: 2356:Disability in children's literature 873:List of disability rights activists 13: 2219:Emotional or behavioral disability 1432: 1380: 1349: 1322: 1272: 1218: 1200: 1174: 14: 2460: 1751:Social care in the United Kingdom 1529:to help reach a consensus. › 1510: 1145: 1114:Williamson, Bess (26 June 2012). 629: 2412: 2403: 2402: 1779:Caring in intimate relationships 1307:10.1111/j.1365-2524.2006.00616.x 1288:Duncan, S.; Reutter, L. (2006). 1141:http://www.independentliving.org 508: 507: 405:National Telecommuting Institute 23: 1741:Home care in the United Kingdom 1698:Caring for people with dementia 1426: 1407: 893:Post-Polio Health International 816:(BCODP, 1981–2017) started the 2234:Disability and LGBT identities 1870: 1799:Unlicensed assistive personnel 1746:Home care in the United States 1570: 1463:The Disability Rights Movement 1396:Faraday, F. (April 15, 2020). 1188:Galer, D. (February 5, 2015). 1133: 1107: 1098: 1058: 1031: 980: 931: 762:Centers for Independent Living 410:Society for Disability Studies 267:Unlicensed assistive personnel 1: 2046:Services for mental disorders 1830:Distress in cancer caregiving 1514: 1120:Boom: A Journal of California 944:Behavior Analysis in Practice 924: 768:Center for Independent Living 741: 681: 2051:Services for disabled people 344:Supplemental Security Income 106:Ableism / Disablism 7: 2334:Arts, media, culture, sport 1784:Direct support professional 1726:Nursing home care in Canada 1210:Dyck, E. (April 28, 2014). 1164:"The Industrial Revolution" 831: 359:Disabled students allowance 354:Disability Living Allowance 46:, discuss the issue on the 10: 2465: 2361:Disability in horror films 2153:Activities of daily living 1606:Activities of daily living 903:Social model of disability 858:Disability rights movement 826:Social Model of Disability 791:developmental disabilities 636:disability rights movement 621:Social Model of Disability 608:medical view of disability 218:Disability rights movement 2398: 2333: 2267: 2206: 2140: 2105: 2059: 2038: 2002: 1976: 1969: 1909: 1878: 1812: 1771: 1716: 1690: 1624: 1578: 1459:Fleischer, Doris (2001). 1250:10.1017/S0714980816000672 1194:The Canadian Encyclopedia 993:Journal of Aging Research 956:10.1007/s40617-014-0011-6 878:Mainstreaming (education) 863:Independent senior living 364:Disabled Persons Railcard 2254:Sexuality and disability 2229:Disability and disasters 2141:Structural and assistive 1611:Long-term care insurance 1527:templates for discussion 1212:"Deinstitutionalization" 1116:"The People's Sidewalks" 377:the Severely Handicapped 333:Socioeconomic assistance 243:Sexuality and disability 2368:Disability in the media 2239:Disability and religion 2178:Personal Care Assistant 888:Person-centred planning 868:Intellectual disability 492:Disability in the media 2351:Disability in the arts 2244:Disability and poverty 2183:Physical accessibility 1813:Support for caregivers 1691:Special considerations 708:deinstitutionalisation 611:of their own, getting 575:, a way of looking at 482:Disability in the arts 305:Physical accessibility 1942:driver rehabilitation 1718:Caregiving by country 1168:Government of Ontario 1040:Arch Phys Med Rehabil 752:Amnesty International 603:being the next step. 233:People-first language 211:Societal implications 2275:Models of disability 2259:Youth and disability 2224:Invisible disability 2173:Orthotics and braces 2158:Assistive technology 1970:Rights, law, support 1682:Retirement community 1601:Occupational therapy 1487:Pelka, Fred (1997). 1423:Retrieved 2012-01-21 1006:10.1155/2016/8062079 883:Occupational therapy 822:Disability Rights UK 776:Berkeley, California 595:. In the context of 300:Orthotics and braces 285:Assistive technology 52:create a new article 44:improve this article 1927:Learning disability 1794:Sandwich generation 1772:Types of caregivers 1625:Living arrangements 1579:Background concepts 1232:Barken, R. (2017). 766:In 1972, the first 670:, Beverly Chapman, 585:equal opportunities 261:Personal assistance 168:Learning disability 2341:Disability culture 2268:Disability studies 2163:Independent living 1891:Disability studies 1637:Home modifications 1632:Independent living 1533:Independent living 1419:2010-11-23 at the 1374:Parkland Institute 1139:Dr. Adolf Ratzka, 589:self-determination 567:), as seen by its 561:Independent living 375:Assured Income for 2444:Disability rights 2426: 2425: 2295:Neuroqueer theory 2198:Web accessibility 2148:Accessible toilet 2136: 2135: 1989:Disability rights 1984:Ableism/disablism 1838: 1837: 1789:Family caregivers 746:Analogous to the 732:Canada Health Act 690:History in Canada 640:special education 558: 557: 320:Web accessibility 280:Accessible toilet 163:Special education 101:Disability theory 94:Theory and models 80: 79: 72: 54:, as appropriate. 2456: 2416: 2415: 2406: 2405: 2388:Special Olympics 2280:Inspiration porn 2193:Universal design 1994:Pejorative terms 1974: 1973: 1937:Physical therapy 1865: 1858: 1851: 1842: 1841: 1825:Caregiver stress 1708:End-of-life care 1677:Residential care 1565: 1558: 1551: 1542: 1541: 1506: 1494: 1479: 1478: 1466: 1456: 1450: 1449: 1447: 1445: 1433:Lucero, Adam K. 1430: 1424: 1411: 1405: 1404: 1402: 1393: 1378: 1377: 1371: 1362: 1347: 1346: 1344: 1335: 1320: 1319: 1309: 1285: 1270: 1269: 1229: 1216: 1215: 1207: 1198: 1197: 1185: 1172: 1171: 1160: 1143: 1137: 1131: 1130: 1128: 1126: 1111: 1105: 1102: 1096: 1095: 1074: 1065: 1062: 1056: 1055: 1035: 1029: 1028: 1018: 1008: 984: 978: 977: 967: 935: 756:cripple tribunal 748:Russell Tribunal 550: 543: 536: 511: 510: 451:Paralympic Games 446:Special Olympics 315:Universal design 238:Pejorative terms 82: 81: 75: 68: 64: 61: 55: 27: 26: 19: 2464: 2463: 2459: 2458: 2457: 2455: 2454: 2453: 2429: 2428: 2427: 2422: 2394: 2329: 2263: 2202: 2132: 2106:Activist groups 2101: 2055: 2034: 1998: 1965: 1905: 1874: 1869: 1839: 1834: 1808: 1767: 1712: 1686: 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Index

worldwide view
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Disability
Disability theory
Ableism / Disablism
Medical model
Social model
Other models
Mainstreaming
Individualized Education Program (IEP)
Special needs
Special school
Special education
Learning disability
Physical
Occupational
Speech
Disability rights movement
Inclusion
Normalization
People-first language
Pejorative terms
Sexuality and disability
Women's health
Unlicensed assistive personnel
ADLs
Accessible toilet

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