Knowledge

Epilepsy Society

Source đź“ť

158: 24: 106:, Buckinghamshire, UK, its stated mission is "to enhance the quality of life of people affected by epilepsy by promoting research, education and public awareness and by delivering specialist medical care and support services." The Epilepsy Society has close partnerships with the 285:
and became law in September 2023 when the Bill completed its passage through Parliament. The law will criminalise the deliberate sending of flashing images to a person with epilepsy with the intent of triggering a seizure, and offenders could face up to five years in jail.
629: 659: 185:. The aim was to establish an agricultural colony where people with epilepsy could live and work. A 370-acre (1.5 km) farm was bought in Chalfont St Peter which at its peak in the 1950s, cared for over 550 people. 358: 574: 656: 229:
In April 2019, the Epilepsy Society launched a campaign to ban so-called epilepsy trolling, where online trolls target people with epilepsy, sending them flashing images and
546: 453: 355: 166: 309: 405: 107: 1129: 700: 479: 126:
Epilepsy Society is a leading epilepsy medical charity supporting all people affected by epilepsy. The services provided by the charity include:
247:
After it emerged that no existing legislation specifically criminalised this type of trolling, the Zach's Law campaign was endorsed by the
1124: 532: 520: 1139: 374: 1068: 985: 899: 457: 1032: 693: 507: 130:
Residential care for over 100 adults within care homes at the Chalfont Centre and also in supported living accommodation.
962: 248: 1047: 919: 871: 157: 602: 508:"Law Commission recommends specific offence for malicious tweets sent to trigger seizures | Epilepsy Society" 1134: 990: 793: 401:"The neurological founding fathers of the National Society for Epilepsy and of the Chalfont Centre for Epilepsy" 1007: 980: 686: 480:"Epilepsy Society calls on Gov to safeguard people with photosensitive epilepsy online | Epilepsy Society" 136:
Research into the causes, diagnosis and treatment of epilepsy. Research focuses on brain imaging and genetics.
1042: 957: 493: 1012: 924: 575:"Batley and Spen MP Kim Leadbeater welcomes publication of 'Zach's Law' to protect people with epilepsy" 929: 214:
instrument in 2004, which produces higher resolution images. The NSE's MRI Unit is at the forefront of
203: 111: 1080: 521:
https://epilepsysociety.org.uk/sites/default/files/2021-02/Daily%20Express%2019%20February%202021.pdf
256: 240:
Following a large-scale attack on people with epilepsy in May 2020, including an 8 year old charity
876: 547:"Dean Russell supports the inclusion of Zach's Law into the Online Safety Bill during final stages" 192:
treatment unit was established at Chalfont in 1972. Around this time, the Society became known as
133:
Diagnosis, assessment and treatment at the Sir William Gowers Centre in Chalfont, Buckinghamshire.
841: 806: 189: 588: 102:
in the United Kingdom, providing services for people with epilepsy for over 100 years. Based in
856: 836: 776: 282: 178: 174: 914: 861: 142:
Campaigning on issues to help all people affected by epilepsy live as full a life as possible
1097: 891: 881: 801: 752: 115: 8: 1085: 1052: 972: 949: 667: 427: 400: 1037: 866: 709: 432: 103: 1091: 934: 846: 747: 422: 414: 560: 1074: 939: 904: 742: 737: 673: 663: 362: 281:
On the 5th December 2022, Zach's Law was officially included in the Government's
215: 533:"Trolls attack boy with epilepsy, 8, by sending him hundreds of flashing images" 386: 1000: 995: 909: 783: 768: 732: 603:"Youngster celebrates new law after campaign against trolls targeting epilepsy" 340: 328: 271: 173:. The first executive committee of the Society included the notable physicians 1118: 825: 816: 727: 275: 252: 182: 267: 263: 244:
named Zach Eagling, the Epilepsy Society titled the campaign "Zach's Law."
211: 200: 139:
Epilepsy information, a national helpline and awareness raising programmes.
674:
Lost Hospitals of London, History of Chalfont St. Peter's epileptic colony
436: 418: 678: 630:"Trolling of epilepsy sufferers with flashing images to be made illegal" 23: 241: 218:
research applied to epilepsy. In 2011 the charity changed its name to
650: 65: 713: 207: 99: 234: 494:"Hero Zach completes his 2.6 challenge | Epilepsy Society" 278:
backed the campaign and met with Zach on several occasions.
53:
Chesham Lane, Chalfont St Peter, Buckinghamshire SL9 0RJ, UK
398: 230: 206:
scanner was installed - the first dedicated to research in
324: 322: 169:, together with various philanthropists, founded the 167:
National Hospital for the Paralysed and the Epileptic
319: 406:Journal of Neurology, Neurosurgery, and Psychiatry 148:Employment opportunities for people with epilepsy. 399:Sander, JW; Barclay, J; Shorvon, SD (June 1993). 334: 171:National Society for the Employment of Epileptics 98:) is the largest medical charity in the field of 1116: 108:National Hospital for Neurology and Neurosurgery 161:Passmore Edwards House, part of Chalfont Centre 694: 375:Epilepsy Society Increase Valproate awareness 145:Epilepsy training to external organisations. 701: 687: 356:Epilepsy Employment Stigma can be Overcome 305: 303: 301: 299: 22: 708: 448: 446: 426: 1069:Citizens United for Research in Epilepsy 351: 349: 156: 296: 1130:Health charities in the United Kingdom 1117: 443: 210:. This has now been superseded by a 3 682: 627: 346: 251:, featured on the front cover of the 986:Dentatorubral–pallidoluysian atrophy 165:In 1892, a group of physicians from 1033:Sudden unexpected death in epilepsy 628:Hymas, Charles (17 February 2023). 13: 1125:Charities based in Buckinghamshire 963:Complex partial status epilepticus 657:Entry on the Register of Charities 456:. Epilepsy Society. Archived from 249:Law Commission (England and Wales) 14: 1151: 1140:Organizations established in 1892 1048:Psychogenic non-epileptic seizure 920:Benign familial neonatal seizures 872:Sleep-related hypermotor epilepsy 644: 454:"The History of Epilepsy Society" 194:The National Society for Epilepsy 84:The National Society for Epilepsy 341:Public "ignorant" about epilepsy 233:with the intent of triggering a 224: 621: 595: 581: 567: 553: 539: 525: 514: 500: 486: 1008:Early myoclonic encephalopathy 981:Progressive myoclonus epilepsy 472: 392: 380: 368: 1: 329:Brain Damage Link to Epilepsy 312:Duncan, JS & G Faulkner. 289: 96:National Society for Epilepsy 958:Epilepsia partialis continua 387:Epilepsy Spirit Myths Endure 7: 1013:Juvenile myoclonic epilepsy 991:Unverricht–Lundborg disease 121: 10: 1156: 930:Myoclonic astatic epilepsy 316:. 2003. Retrieved 13/04/18 152: 112:UCL Institute of Neurology 1081:Epilepsy Action Australia 1061: 1025: 971: 948: 890: 824: 815: 792: 761: 720: 257:Metro (British newspaper) 78: 60: 46: 38: 30: 21: 1043:Landau–Kleffner syndrome 877:Panayiotopoulos syndrome 651:Epilepsy Society website 925:Lennox–Gastaut syndrome 807:Epilepsy and employment 190:National Health Service 94:(formerly known as the 34:Charitable organisation 1135:Epilepsy organizations 857:Temporal lobe epilepsy 777:Electroencephalography 670:for England and Wales. 175:John Hughlings Jackson 162: 862:Frontal lobe epilepsy 419:10.1136/jnnp.56.6.599 160: 39:Registration no. 1098:Epilepsy Research UK 882:Vertiginous epilepsy 802:Epilepsy and driving 753:Epilepsy in children 1086:Epilepsy Foundation 1053:Epilepsy in animals 733:Aura (warning sign) 609:. 20 September 2023 18: 973:Myoclonic epilepsy 950:Status epilepticus 668:Charity Commission 662:2009-01-27 at the 563:. 28 October 2022. 549:. 18 January 2023. 389:BBC News, May 2003 377:ITV News, 26/09/17 365:UCB News, May 2016 361:2016-10-19 at the 283:Online Safety Bill 179:Sir William Gowers 163: 114:, both located in 16: 1112: 1111: 1026:Related disorders 1021: 1020: 867:Rolandic epilepsy 607:independent.co.uk 460:on 9 October 2011 220:Epilepsy Society. 104:Chalfont St Peter 88: 87: 1147: 1103:Epilepsy Society 1092:Epilepsy Outlook 935:Epileptic spasms 847:Gelastic seizure 822: 821: 748:Neonatal seizure 703: 696: 689: 680: 679: 638: 637: 625: 619: 618: 616: 614: 599: 593: 592: 585: 579: 578: 571: 565: 564: 557: 551: 550: 543: 537: 536: 529: 523: 518: 512: 511: 504: 498: 497: 490: 484: 483: 482:. 15 April 2019. 476: 470: 469: 467: 465: 450: 441: 440: 430: 396: 390: 384: 378: 372: 366: 353: 344: 338: 332: 326: 317: 307: 92:Epilepsy Society 74: 71: 69: 68:.epilepsysociety 67: 26: 19: 17:Epilepsy Society 15: 1155: 1154: 1150: 1149: 1148: 1146: 1145: 1144: 1115: 1114: 1113: 1108: 1075:Epilepsy Action 1057: 1017: 967: 944: 940:Febrile seizure 905:Absence seizure 886: 842:Complex partial 811: 794:Personal issues 788: 773:Investigations 769:Anticonvulsants 757: 743:Epileptogenesis 738:Postictal state 716: 707: 664:Wayback Machine 647: 642: 641: 626: 622: 612: 610: 601: 600: 596: 587: 586: 582: 573: 572: 568: 559: 558: 554: 545: 544: 540: 531: 530: 526: 519: 515: 510:. 21 July 2021. 506: 505: 501: 492: 491: 487: 478: 477: 473: 463: 461: 452: 451: 444: 397: 393: 385: 381: 373: 369: 363:Wayback Machine 354: 347: 339: 335: 327: 320: 310:Chalfont Centre 308: 297: 292: 227: 216:medical imaging 155: 124: 81: 80:Formerly called 64: 56: 12: 11: 5: 1153: 1143: 1142: 1137: 1132: 1127: 1110: 1109: 1107: 1106: 1100: 1095: 1089: 1083: 1078: 1072: 1065: 1063: 1059: 1058: 1056: 1055: 1050: 1045: 1040: 1038:Todd's paresis 1035: 1029: 1027: 1023: 1022: 1019: 1018: 1016: 1015: 1010: 1005: 1004: 1003: 1001:Lafora disease 998: 996:MERRF syndrome 993: 988: 977: 975: 969: 968: 966: 965: 960: 954: 952: 946: 945: 943: 942: 937: 932: 927: 922: 917: 912: 910:Atonic seizure 907: 902: 896: 894: 888: 887: 885: 884: 879: 874: 869: 864: 859: 854: 850: 849: 844: 839: 837:Simple partial 834: 830: 828: 819: 813: 812: 810: 809: 804: 798: 796: 790: 789: 787: 786: 784:Epileptologist 781: 780: 779: 771: 765: 763: 759: 758: 756: 755: 750: 745: 740: 735: 730: 724: 722: 718: 717: 706: 705: 698: 691: 683: 677: 676: 671: 654: 646: 645:External links 643: 640: 639: 620: 594: 580: 566: 552: 538: 535:. 29 May 2020. 524: 513: 499: 496:. 6 July 2020. 485: 471: 442: 413:(6): 599–604. 391: 379: 367: 345: 333: 318: 294: 293: 291: 288: 272:Kim Leadbeater 262:MPs including 226: 223: 199:In 1995 a 1.5 154: 151: 150: 149: 146: 143: 140: 137: 134: 131: 123: 120: 86: 85: 82: 79: 76: 75: 62: 58: 57: 55: 54: 50: 48: 44: 43: 40: 36: 35: 32: 28: 27: 9: 6: 4: 3: 2: 1152: 1141: 1138: 1136: 1133: 1131: 1128: 1126: 1123: 1122: 1120: 1104: 1101: 1099: 1096: 1093: 1090: 1087: 1084: 1082: 1079: 1076: 1073: 1070: 1067: 1066: 1064: 1062:Organizations 1060: 1054: 1051: 1049: 1046: 1044: 1041: 1039: 1036: 1034: 1031: 1030: 1028: 1024: 1014: 1011: 1009: 1006: 1002: 999: 997: 994: 992: 989: 987: 984: 983: 982: 979: 978: 976: 974: 970: 964: 961: 959: 956: 955: 953: 951: 947: 941: 938: 936: 933: 931: 928: 926: 923: 921: 918: 916: 913: 911: 908: 906: 903: 901: 898: 897: 895: 893: 889: 883: 880: 878: 875: 873: 870: 868: 865: 863: 860: 858: 855: 852: 851: 848: 845: 843: 840: 838: 835: 832: 831: 829: 827: 823: 820: 818: 817:Seizure types 814: 808: 805: 803: 800: 799: 797: 795: 791: 785: 782: 778: 775: 774: 772: 770: 767: 766: 764: 760: 754: 751: 749: 746: 744: 741: 739: 736: 734: 731: 729: 728:Seizure types 726: 725: 723: 719: 715: 711: 704: 699: 697: 692: 690: 685: 684: 681: 675: 672: 669: 665: 661: 658: 655: 652: 649: 648: 635: 634:The Telegraph 631: 624: 608: 604: 598: 590: 584: 576: 570: 562: 556: 548: 542: 534: 528: 522: 517: 509: 503: 495: 489: 481: 475: 459: 455: 449: 447: 438: 434: 429: 424: 420: 416: 412: 408: 407: 402: 395: 388: 383: 376: 371: 364: 360: 357: 352: 350: 342: 337: 330: 325: 323: 315: 311: 306: 304: 302: 300: 295: 287: 284: 279: 277: 276:John Nicolson 273: 269: 265: 260: 258: 254: 253:Daily Express 250: 245: 243: 238: 236: 232: 225:Online safety 222: 221: 217: 213: 209: 205: 202: 197: 195: 191: 186: 184: 183:David Ferrier 180: 176: 172: 168: 159: 147: 144: 141: 138: 135: 132: 129: 128: 127: 119: 117: 113: 109: 105: 101: 97: 93: 83: 77: 73: 63: 59: 52: 51: 49: 45: 41: 37: 33: 29: 25: 20: 1102: 900:Tonic–clonic 633: 623: 613:22 September 611:. Retrieved 606: 597: 583: 569: 561:"Zach's Law" 555: 541: 527: 516: 502: 488: 474: 462:. Retrieved 458:the original 410: 404: 394: 382: 370: 336: 313: 280: 268:Suzanne Webb 264:Dean Russell 261: 246: 239: 228: 219: 198: 193: 187: 170: 164: 125: 116:Queen Square 95: 91: 89: 892:Generalised 255:and in the 1119:Categories 915:Automatism 762:Management 290:References 242:fundraiser 118:, London. 666:from the 853:Epilepsy 833:Seizures 714:epilepsy 710:Seizures 660:Archived 464:7 August 359:Archived 343:BBC News 331:BBC News 208:epilepsy 122:Services 110:and the 100:epilepsy 47:Location 589:"x.com" 437:8509771 314:Seizure 235:seizure 196:(NSE). 153:History 61:Website 721:Basics 435:  428:489607 425:  181:, and 42:206186 826:Focal 212:tesla 201:tesla 1105:(UK) 1094:(UK) 1088:(US) 1077:(UK) 1071:(US) 712:and 615:2023 466:2011 433:PMID 274:and 231:GIFs 90:The 70:.org 31:Type 423:PMC 415:doi 204:MRI 72:.uk 66:www 1121:: 632:. 605:. 445:^ 431:. 421:. 411:56 409:. 403:. 348:^ 321:^ 298:^ 270:, 266:, 259:. 237:. 188:A 177:, 702:e 695:t 688:v 653:. 636:. 617:. 591:. 577:. 468:. 439:. 417::

Index


www.epilepsysociety.org.uk
epilepsy
Chalfont St Peter
National Hospital for Neurology and Neurosurgery
UCL Institute of Neurology
Queen Square

National Hospital for the Paralysed and the Epileptic
John Hughlings Jackson
Sir William Gowers
David Ferrier
National Health Service
tesla
MRI
epilepsy
tesla
medical imaging
GIFs
seizure
fundraiser
Law Commission (England and Wales)
Daily Express
Metro (British newspaper)
Dean Russell
Suzanne Webb
Kim Leadbeater
John Nicolson
Online Safety Bill

Text is available under the Creative Commons Attribution-ShareAlike License. Additional terms may apply.

↑