22:
175:, a rare and chronic heart condition. Founded in New Jersey, CCF has grown into a global community of families, physicians, and scientists focused on accelerating the search for causes and cures for pediatric cardiomyopathy through increased research, education, awareness, and advocacy. The organization also provides support and resources to affected children and their families.
213:, “Survival Without Cardiac Transplantation Among Children with Dilated Cardiomyopathy,” it was shown that there was a 50% reduction in diagnosed children dying and needing a heart transplant because of better care guidelines and collaborative research efforts made possible by CCF's support of the Pediatric Cardiomyopathy Registry.
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CCF was founded in 2002 by Eddie Yu and Lisa Yue, who lost two children to cardiomyopathy. At the time, cardiomyopathy was a poorly understood disease in young children with low public awareness. Due to the lack of research being conducted on pediatric cardiomyopathy, the
Foundation established a
381:
Singh, Rakesh K.; Canter, Charles E.; Shi, Ling; Colan, Steven D.; Dodd, Debra A.; Everitt, Melanie D.; Hsu, Daphne T.; Jefferies, John L.; Kantor, Paul F.; Pahl, Elfriede; Rossano, Joseph W.; Towbin, Jeffrey A.; Wilkinson, James D.; Lipshultz, Steven E.; Pediatric
Cardiomyopathy Registry
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CCF's investment into research and education has led to more than 420 medical presentations and peer-reviewed publications on pediatric cardiomyopathy and a four-fold increase in the number and dollar amount of pediatric cardiomyopathy studies funded by the
216:
Through CCF's advocacy work, the
Cardiomyopathy Health Education Awareness Risk Assessment and Training in the Schools Act was the first bill on cardiomyopathy to be introduced in the
196:-funded Pediatric Cardiomyopathy Registry. The Foundation also organizes international scientific conferences to encourage collaboration among researchers across medical centers.
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Wilkinson, J. D.; Sleeper, L. A.; Alvarez, J. A.; Bublik, N.; Lipshultz, S. E.; the
Pediatric Cardiomyopathy Study Group (April 25, 2008).
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450:"Pallone Introduces Bill to Combat Silent Killer in Young People, Sudden Cardiac Arrest"
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432:"Menendez, Lautenberg Introduce Legislation to Educate Families About Cardiomyopathy"
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384:"Survival Without Cardiac Transplantation Among Children with Dilated Cardiomyopathy"
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224:. In 2020, it was reintroduced as a bipartisan bill in the House of Representatives.
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research grant program and formed research partnerships with the
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Medical and health organizations based in New Jersey
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246:"The Pediatric Cardiomyopathy Registry: 1995–2007"
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388:Journal of the American College of Cardiology
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194:National Heart, Lung, and Blood Institute
70:American non-profit medical organization
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158:Children's Cardiomyopathy Foundation
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382:Investigators (November 21, 2017).
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171:focused on the pediatric forms of
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520:Organizations established in 2002
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207:In a 2017 paper published in the
364:"Scientific Conference Overview"
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332:Yue, Lisa (March 2016).
312:"Programs and Services"
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438:. February 17, 2012.
222:United States Senate
515:Tenafly, New Jersey
456:. December 8, 2011.
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130:Headquarters
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111:Legal status
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87:Established
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228:References
59:April 2021
50:; try the
37:link to it
344:: 29–34.
294:"Mission"
166:501(c)(3)
114:501(c)(3)
40:. Please
418:29169474
280:19343086
125:research
98:Lisa Yue
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271:2408445
179:History
141:Website
119:Purpose
95:Founder
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414:PMID
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