34:, carers and clinicians together, in Priority Setting Partnerships, to identify and prioritise unanswered questions or evidence uncertainties that they agree are the most important. The intention is to ensure that those who fund health research are aware of what matters to patients, carers and clinicians who need to use the research in their everyday lives.
41:(NIHR) funds the coordination of the JLA, but Priority Setting Partnerships find their own resources to fund their partnership. In 2016 the James Lind Alliance was granted the Societal Award of the Foundation Federation of Dutch Medical Scientific Societies (Federa) for their initiative to bring patients into partnerships for research priorities.
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Research on the effects of treatments often overlooks the shared interests of patients and clinicians. As a result, questions they both consider important are not addressed. The pharmaceutical and medical technology industries and academia play essential roles in developing new treatments, but their
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The James Lind
Alliance brings together patients and patient representatives, carers and clinicians, as individuals or represented by groups, to form Priority Setting Partnerships, focusing on specific health conditions or settings. For example, the Asthma Priority Setting Partnership was led by
138:. Lind, a Scottish naval surgeon, decided to confront this uncertainty by treating his patients within a clinical trial comparing six of the proposed remedies. His trial showed that oranges and lemons were dramatically better than the other supposed treatments.
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priorities are not necessarily the same as those of patients and clinicians. For this reason many areas of potentially valuable research are neglected. Bringing patients and clinicians together to jointly prioritise unanswered questions is thought to be rare.
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Priority
Setting Partnerships work together to gather uncertainties from patients, carers and clinicians. The uncertainties are all checked to ensure they cannot be answered by existing knowledge, research or sources of information.
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209:"Prioritizing research: Patients, carers, and clinicians working together to identify and prioritize important clinical uncertainties in urinary incontinence"
67:, while the Urinary Incontinence Priority Setting Partnership was led by the Bladder & Bowel Foundation and the Cochrane Incontinence Group, part of the
114:, Cardiac Arrest (Canada), Congenital Heart Disease, Problematic Hip Replacement, Palliative and End of Life Care, Veterans' Health, and Surgery for Common
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The uncertainties then go through a process of prioritisation, which culminates in a top ten list of priorities for research, shared by patients,
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134:(1716–1794). Two hundred and fifty years ago, there were many conflicting ideas and unanswered questions about how to treat the deadly disease
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and clinicians. To date, the process has been completed for over 160 health areas in the UK and internationally, including
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Buckley, Brian S.; Grant, Adrian M.; Tincello, Douglas G.; Wagg, Adrian S.; Firkins, Lester (21 September 2009).
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is a UK-based non-profit making initiative, established in 2004. It was established to bring
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Swedish Agency for Health
Technology Assessment and Assessment of Social Services (SBU)
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The Lancet, Volume 364, Issue 9449, Pages 1923 - 1924, 27 November 2004
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167:"Towards greater participation by patients in science | Federa"
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Canadian Agency for Drugs and
Technologies in Health (CADTH)
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National
Institute for Health and Care Excellence (NICE)
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British
Medical Journal 2008;336:903-904 (26 April)
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412:Evidence-based pharmacy in developing countries
387:Evidence-based library and information practice
39:National Institute for Health and Care Research
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632:German Agency for Quality in Medicine (AEZQ)
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112:Mental Health in Children and Young People
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663:Centre for Reviews and Dissemination
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94:, Living With and Beyond Cancer,
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397:Evidence-based medical ethics
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527:Policy-based evidence making
491:Health technology assessment
213:Neurourology and Urodynamics
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486:Randomized controlled trial
362:Evidence-based conservation
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422:Evidence-based prosecution
382:Evidence-based legislation
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377:Evidence-based education
367:Evidence-based dentistry
65:British Thoracic Society
417:Evidence-based policing
402:Evidence-based medicine
331:Evidence-based practice
317:Evidence-based practice
601:Science-Based Medicine
596:Campbell Collaboration
591:Cochrane Collaboration
407:Evidence-based nursing
108:Oral and Dental Health
69:Cochrane Collaboration
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427:Evidence-based policy
372:Evidence-based design
336:Hierarchy of evidence
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281:James Lind Institute
84:Urinary Incontinence
22:James Lind 1716–1794
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271:James Lind Alliance
177:on 4 November 2016.
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352:Effective altruism
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558:Ken Harvey
171:federa.org
142:References
132:James Lind
122:James Lind
45:Background
324:Key terms
61:Asthma UK
656:Academic
627:EUnetHTA
243:10216536
235:19771595
63:and the
32:patients
457:Methods
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100:Stroke
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