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The
Government has committed that access to GP data will only be via a Trusted Research Environment (TRE) and never copied or shipped outside the NHS secure environment, except where individuals have consented to their data being accessed e.g. written consent for a research study. This is intended to
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Patients can out of NHS data sharing at two levels, firstly then can ask their GP not to share data with NHS digital for purposes of research and planning, called a Type 1 Opt Out, and secondly they can opt out of NHS Digital sharing - the
National Data Opt Out.
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We commit to only begin the data collection once the TRE is in place. Further, we will ensure that the BMA, RCGP and the
National Data Guardian have oversight of the proposed arrangements and are satisfied with them before data upload begins.
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We are also committed to adopting a transparent approach, including publishing who has run what query and used which bit of data. We are developing a TRE which will meet our specific needs and act as 'best in class'.
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magazine - distributed to general practitioners in the UK, carried articles reflecting concern about the scope of the data being collected and the additional workload and legal risks it would impose on GPs
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Responsibility for informing patients was devolved to GP Practices, for example by updating the
Privacy Notice on their website. Doctors urged a delay in introduction due to these concerns
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It received a cautious welcome for the potential benefits to Health
Research, particularly as large scale medical data is providing valuable data on the most effective treatments for
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From the GP Data for
Planning and Research: Letter from Parliamentary Under Secretary of State for Health and Social Care to general practices in England - 19 July 2021
369:"GP Data for Planning and Research: Letter from Parliamentary Under Secretary of State for Health and Social Care to general practices in England - 19 July 2021"
355:"GP Data for Planning and Research: Letter from Parliamentary Under Secretary of State for Health and Social Care to general practices in England - 19 July 2021"
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Once the data is collected, it will only be used for the purposes of improving health and care. Patient data is not for sale and will never be for sale.
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as a means of transmitting data intended for use beyond that of providing individual health care. This might include healthcare planning, or research.
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the ability to delete data if patients choose to opt-out of sharing their GP data with NHS Digital, even if this is after their data has been uploaded
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The process of making GP data available to NHS Digital for wider use was due to begin on 1 July 2021, but was delayed until 1 September
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give both GPs and patients a very high degree of confidence that their data will be safe and their privacy protected.
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The Type 1 Opt Out was implemented by the patient filling out a downloadable paper form and returning it to their GP,
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I can also confirm that the previously published Data
Provision Notice for this collection has been withdrawn.
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Amongst patients and the general public concerns have been raised about sale of NHS data to private companies.
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patients have been made more aware of the scheme through a campaign of engagement and communication
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323:"General Practice Data for Planning and Research: NHS Digital Transparency Notice"
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system was set up by the
British National Health Service as a replacement for the
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242:"New GP data extraction 'far exceeds' care.data plans, warn privacy campaigners"
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The TRE will be built in line with best practice developed in projects, such as
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a
Trusted Research Environment has been developed and implemented in NHS Digital
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288:"General Practice Data for Planning and Research: GP Practice Privacy Notice"
268:"Big Brother's big data grab: GPs caught up in patient records controversy"
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Our perspective on the new system for GP data | Understanding patient data
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228:"Tell me how you?ll use my medical data. Only then might I sign up"
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and the Office for
National Statistics’ Secure Research Service.
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It has now been delayed until four criteria have been met
202:"NHS data sale 'an invasion of privacy', campaigners say"
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General Practice Data for Planning and Research (GPDPR)
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341:"New NHS patient data store delayed by two months"
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18:General Practice Data for Planning and Research
309:"Doctors urge delay to England GP data scrape"
167:"Why I back the NHS patient data-sharing plan"
85:the backlog of opt-outs has been fully cleared
181:"Coronavirus (COVID-19): Special Collections"
431:Medical databases in the United Kingdom
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426:Department of Health and Social Care
145:"NHS Digital announcement of GPDPR"
38:Privacy and implementation concerns
22:General Practice Extraction Service
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27:It was announced on 21 May 2021,
391:How to opt out | medConfidential
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165:Toynbee, Polly (11 June 2021).
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371:. NHS Digital. 19 July 2021.
357:. NHS Digital. 19 July 2021.
226:Malik, Kenan (6 June 2001).
96:Data security and governance
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343:. BBC News. 8 June 2021.
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421:Databases in England
71:Implementation delay
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406:OpenSAFELY: Home
396:use MY data - 94
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327:NHS Digital
415:Categories
131:References
110:OpenSAFELY
293:8 August
252:8 August
211:6 August
206:BBC News
186:8 August
150:8 August
32:Covid-19
59:Opt out
273:Pulse
48:Pulse
295:2021
254:2021
213:2021
188:2021
152:2021
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