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Data on patients who did not object would then be used in anonymised form by health care researchers, managers and planners including those outside the NHS such as academic institutions or commercial organisations. The use of identifiable data is governed by the common law on confidentiality, UK data
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Since its launch, the care.data program was controversial. Initially criticism focused around the lack of patient awareness of the programme, and the lack of clarity around options for opting out of the data extraction. The leaflet sent to households in
England was criticised for only describing the
148:
in
December 2015 and accused of taking advantage of the Department of Health and not showing "an appropriate duty of care to the taxpayer”. The company is one of 8 suppliers working on the project and is to be paid £11.4 million, an increase on the original £8 million.
152:
In June 2015, it was announced that the programme of data extraction would start again in
Blackburn in September. In September 2015, it was announced that the programme had again been paused due to confidentiality concerns remaining unresolved.
137:
said to have been conducted in
October 2014 concluded that the program had “major issues with project definition, schedule, budget, quality and/or benefits delivery, which at this stage do not appear to be manageable or resolvable”.
262:
175:
was criticised for failing to communicate its intentions beyond updating its website, effectively disenfranchising a huge portion of the general public who do not monitor the site. The new strategy is to be branded as
83:(GPES). Members of the English population who were registered with GP practices were informed that data on their health would be uploaded to HSCIC unless they exercised their rights to object by informing their GP.
240:
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180:. A spokesperson for MedConfidential said: "The biggest single issue is trust and unless the government gets this right they are going to collapse trust again."
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in four areas of
England were selected to take part in a "pathfinder" programme involving 265 GP surgeries with 1.7 million patients across West
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benefits of the scheme, and not including an opt-out form. The programme was stopped in May 2014 and in
October 2014 six
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95:. Identifiable data can only be released in compliance with those laws. Software and services were being provided by
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which was compared to Care.data. After widespread protests the launch was put back from 1 July to 1 September 2021.
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263:"40 per cent of GPs plan to opt out of the NHS big data sweep, due to a lack of confidence in the project"
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241:"Atos to work on NHS care data project despite ongoing 'mess' over disability benefit assessments"
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in spring 2013. It aimed to extract data from GP surgeries into a central database through the
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which has itself received criticism for some of its other UK government projects.
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288:"MedConfidential - "Better information means better care" leaflet"
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197:"Burton & Bransgore Medical Centres — Data Sharing"
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may be in need of reorganization to comply with
Knowledge's
437:"New data collection service could 'destroy' patient trust"
412:"NHS to scrap single database of patients' medical details"
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96:
397:"Care.Data paused again due to confidentiality concerns"
481:"NHS data strategy: Hancock defends data sharing plan"
331:"NHS patient data plans unachievable, review finds"
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169:General Practice Data for Planning and Research
77:then Health and Social Care Information Centre
44:to make improvements to the overall structure.
219:"General Practice Extraction Service (GPES)"
309:"care.data pilot schemes poised for launch"
156:The programme was abandoned in July 2016.
163:announced a new programme to replace the
60:Learn how and when to remove this message
199:. burtonandbransgoremedicalcentres.co.uk
518:Medical databases in the United Kingdom
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377:. Health Service Journal. 11 June 2015
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513:Department of Health and Social Care
461:. Government Computing. 19 June 2021
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355:. Financial Times. 31 December 2015
261:Cooper, Charlie (24 January 2014).
165:General Practice Extraction Service
81:General Practice Extraction Service
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375:"Care.data to restart this month"
75:was a programme announced by the
89:National Health Service Act 2006
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353:"MPs attack NHS records scheme"
93:Health and Social Care Act 2012
410:Boseley, Sarah (6 July 2016).
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439:. Digital Health. 27 May 2021
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105:clinical commissioning groups
87:protection legislation, the
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459:"GPDPR or Care.data v2.0?"
146:Public Accounts Committee
333:. Guardian. 26 June 2015
135:Major Projects Authority
144:was criticised by the
508:Databases in England
483:. BBC. 22 June 2021
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173:NHS Digital
161:NHS Digital
502:Categories
315:7 November
225:31 January
203:31 January
184:References
381:23 August
113:Blackburn
109:Hampshire
73:care.data
399:. Pulse.
125:Somerset
91:and the
337:26 June
487:4 July
465:4 July
443:1 June
421:6 July
221:. Atos
117:Darwen
121:Leeds
489:2021
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445:2021
423:2016
383:2015
361:2015
339:2015
317:2014
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142:Atos
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